National Research Study – standing frames as postural management for children with spasticity.

AN INVITATION

We would like to invite you to participate in this national research study ‘Standing frames as postural management for children with spasticity, what is the acceptability of a trial to assess the efficacy of standing frames?’ This study is being carried out by a research team led by Dr Jill Cadwgan from Newcastle University and is funded by The National Institute for Health Research Health Technology Assessment (NIHR HTA) Programme.

For more information, or to read the results from our earlier research (which you may or may not have taken part in), please visit our website:

https://research.ncl.ac.uk/understandingframes/

THE SURVEYS

The purpose of this survey is to gain opinions on standing frame research ideas, and to find out whether standing frame research is acceptable and feasible. We would be very grateful if you could complete this survey regarding the acceptability and feasibility of standing frame research. On completion of the survey you will be able to claim a £10 voucher as a thank you for your time!

There are 3 surveys which you can access via the links below:

If you are a parent-carer of a child with cerebral palsy:

https://www.surveymonkey.co.uk/r/UFparents

If you are a health professional who works with children with cerebral palsy who use standing frames:

https://www.surveymonkey.co.uk/r/UFhealthprofessionals

If you are an educational professional who works with children with cerebral palsy who use standing frames:

https://www.surveymonkey.co.uk/r/UFEducationalProfessionals

HOW MUCH TIME?

If will take you approximately 15 minutes to complete a questionnaire. We would be grateful to receive your responses by Monday 29th May 2017.

Please do not hesitate to contact me or any of the research team if you have any further questions or queries.

Yours sincerely,

Dr Jill Cadwgan (previously Kisler)

Consultant Paediatrician – Neurodisability

Red Nose Day

Red Nose Day runs once every two years and is the main event held by the charity Comic Relief. This year it is taking place on Friday 24 March and we are asking students and staff to come in dressed in either pyjamas or something red.

We are asking parents/guardians to send in cakes and biscuits for a bake sale. All funds raised at the bake sale will go to Comic Relief.

Red noses are being sold in sealed packets with nine different noses available – but you won’t know what you get until “you pick your nose”. Red noses are available for purchase from the main school office for £1.00.